SICCIS Advisory Group
Goals
The South Island Clinical Cancer Information System (SICCIS) Advisory Group was established in 2010 to support and coordinate the implementation of the SICCIS across the South Island of New Zealand. The goals of the SICCIS Advisory Group are to
- Develop definitions for data items to be collected within the SICCIS that are consistently applied across the South Island and in line with national directives
- Develop guidelines for the use of specific data fields within the data collection software MOSAIQ that are applied consistently across the South Island
- Enable the collection of data items that contribute to a meaningful database for cancer in the South Island
Purpose
The purpose of this advisory group is to enable the development of the South Island Clinical Cancer Information System (SICCIS). The advisory group serves to
1. Assess current and planned future scope to which MOSAIQ is used in each centre.
For example:
- What is MOSAIQ used for currently and what future usage is planned in each centre?
- How many redundant processes exist between MOSAIQ and other patient management systems that are in use?
- How are the data interfaces between MOSAIQ and other PMS managed?
2. Identify opportunities to streamline processes through wider application of MOSAIQ in each centre.
For example:
- Which processes could be incorporated into MOSAIQ to streamline the data-flow?
- Are there opportunities to incorporate other relevant information, such as laboratory results into MOSAIQ?
3. Provide guidelines that ensure consistency in data collection and data entry into MOSAIQ between the three centres.
For example:
- How is patient data assessed?
- What staging criterion is used? Do differences in data collection lead to incompatible results in MOSAIQ between centres?
4. Determine the type of data that is to be included in the Cancer Information System.
For example:
- What data would be useful for improving the patient journey?
- What data requirements arise from users of the South Island Clinical Cancer Information System, such as the New Zealand Cancer Registry (NZCR), Mortality collection, National booking reporting system (NBRS), National Health Index (NHI)?
- What data is required for cancer statistics, reporting on treatment wait time, minority disparity assessments?
- What data would serve New Zealand Cancer Research?
5. Develop IT strategies to link the individual MOSAIQ systems to METRIQ.
For example:
- Identify whether there are IT issues and opportunities with the data transfer into and out of METRIQ
6. Develop guidelines for access to data.
For example:
- Agree on terms for access to data and data dissemination to Cancer Centres’ own data, other Cancer Centres’ data, other groups interested in the data such as other registries, MoH, researchers, etc.
7. Determine requirements for housing of SICCIS.
For example:
- What considerations should be given to the housing of METRIQ?
Rationale
The SICCIS advisory group was formed with representatives from each South Island Cancer Centre, including clinicians, radiation therapists, CIO, and IT staff, representatives from the MoH National IT Board, and other stakeholders. Members of the advisory group make decisions on the data to be included in the SICCIS and implementation strategies. Please click here for the group's Terms of Reference and membership list.
Upon recommendations from Graeme Osborne (Director of Information Strategy, National Health IT Board), a leadership group was also established to ensure alignment with other national work-streams, such as the National Health IT Plan, Cancer Core Data Definitions, and Health Practitioner Index. This group is called the National Clinical Cancer Information Leadership Group (NCCILG) and has a national mandate.
Process
The SICCIS advisory group meets approximately every other month. Workshops to address specific tasks are held in addition to these meetings. Please click here for the minutes of the SICCIS advisory group meetings.The meetings are usually scheduled by direct invite to the SICCIS advisory group membership using doodle poll to find the most suitable date and time, approximately 4-6 weeks before the meeting is to take place. If you are interested in attending a SICCIS advisory group meeting or becoming a SICCIS advisory group member, please contact Dr. Ursula Jewell via email at ursula.jewell@siapo.health.nz.
